I have terminal disease that affects both sides of my head & neck, it's called Dual (both sides) Atypical Trigeminal Neuralgia" AKA: "The Suicide Disease". It's a nerve disorder of the brain, I've had 1 brain surgery on the left side of my head which only relieved the pain for approximately 3 - 5 years, after my 4th year the disease came back worst than before. I've also had 2 brain strokes. The pain is excrustiateing, the symptoms feels like a ice pick stabbing in both ears, feels like a pencil being stabbed into both eyes, if the wind blows onto either side of my face or water touches either side it feels like someone threw acid on me, it's very painful to try & brush my hair, my teeth feel like if I could pull everyone of them out maybe the pain would go away, I'll have a headache 24/7 for the rest of my life, my memory isn't that good anymore, I can't comprehend most things, if I look at a computer screen more than 15 min or so my eyes start streaming water so I have to get my wife to write most of my post on the internet, my neurologist told me that now I would have all these symptoms & more for the remainder of my life. Now since I have the worst case of this Terminal Disease & all the other complications the disease is now gone into my right side of my head & face, my neurologist recommended that I "not" have the surgery on the right side of my head, it wouldn't improve my quality of life & with all the complications I have I might not make it through another surgery. Now they have tried every medication that they could think of but I wouldn't let them prescribe me any "opiates", I don't want to be hooked on narcotics, I would like to keep most of my bodily functions that I have now, I'm 47 years old. The neurologist as a last ditch effort to try and manage my pain wants me to go to Huntsville Hospitals Pain Clinic in Al. I know there isn't nothing they can do for me because there's no rehab that they can do for this Terminal Disease, only thing left is to start me on Narcotics to try & manage the pain, if that's the only option I have left I would rather give up, no reason to live in a vegetative stage 24/7. I have tried Medical Marijuana, I was amazed for the first time in 5 years I sat down & eat all of my dinner, I ate almost everything in my house, my headache subsided, I didn't feel the ill symptoms that I experience every day, it was great, I ask myself "How can I legally obtain this medicine to improve my quality of life"? I know I probably could grow it & I also know that the police can arrest me, take my land, vehicles, any money I have on the premises and incarcerate me with fines & penalties stacked upon that. I hate to ask you this question but I really need the medication today not in months/years or decades, would you know of any legal avenue I could pursue to receive this medication, please I'm begging, I'm at the point of giving up & commit suicide for I can't live with this kind of pain for the rest of my life and I feel Narcotics isn't the way to go, it's affecting my family life as well as my private life, my wife worries her self sick that she's not going to have a husband much longer? I had to sign up on my SSI Disability, this is very painful & sad for me to do for I always was used to standing on my own 2 feet & providing for my wife & son. The current version of the bill is available at: http://www.ammjc.org/?attachme...
Can anyone tell me when the next Alabama's legislative session will be to introduce this bill, will it be November of this year (2011) or will we have to wait until the 2nd week of Januaury of 2012?
Write to our Governor: Robert BentlyYou'll have to go to his website to write to him, the AAMJC website has a pre-written letter that may help by sending it to him. Also write to your local Representatives in your district.



